Catching Seizures!

So, after HOURS on end on the telephone thursday between myself, Sydneys neurologist nurse Sue and DigiTrace.... I showed up to Providence over 60 miles away from home only to be told that they would not be able to see her. NO WAY! I AM NOT COMING BACK AGAIN.. NOBODY is reimbursing me for the Gasoline my car burns... NOBODY can set up childcare AGAIN.... I SAT in traffic for 35 minutes before I even got to MYSTIC, CT (Some of you know HOW UTTERLY CLOSE that is to home) NO WAY AM I LEAVING... I was on the phone at Digitrace with some "supervisor" who explained to me that Tricare ALWAYS has this issue... and that we would have to wait for the referral to be correct. UMMM NO... the discrepancy was with 2 seperate spots in the WORDING... FREAKING SCRIBBLE IT OUT and put the RIGHT words... I DONT CARE! This is the only place in the region that hooks this stuff up for Tricare Patients... IT ISNT MY PROBLEM.. I told the lady to send me a bill and I will submit it to Tricare.. THEY KNOW they have to be setting this procedure up and they had plenty of time to get it RIGHT.... NOT my fault! Sue from the Children's NeuroDevelopment Center who is Sydney's Nurse for her Doctor spent over 2 hours on the phone with Tricare at one point. As if she didnt have a MILLION other things to do. I think they thought I was going to back down and leave and say.. "Yeah, sure... another 100 bucks on gas... no problem!" Ummm.. NO..
So.. Sydney DID get all hooked up. She was VERY embarrassed. My mother went with me and we ended up going to see my grandmother on the way home. Sydney was upset... then complaining of a headache. I think it had to do with the glue for the leads that were placed on the front of her head/forehead. So, we stopped at Dollar Tree and got some little receiving blankets and put them on her head. It was INSTANT that her headaches seemed to "go away". We still went in to the supermarket and got some motrin which I did not give to her. We then went for lunch and I had to ask the lady working to not vacuum because it would interfere with Sydney's test. That was WEIRD! People do look at her weird but nobody asks why she has the stuff on her. Reminded me of all the blogs I regularly read where people will avoid talking about a "bad" situation but instead will sit and wonder what is "wrong".... There is a little button to press on the waist pack Sydney has to wear if we "think" something might be going on.. and then it will "record' the 2 minutes prior to the button being pressed and record the following 2 minutes. I think it also will record anything it picks up on its own that is out of the ordinary on an EEG. There is a TV monitor thing we have to hook up to her when she is asleep or just doing "nothing" to see if it can pick up on anything. Today she barely wore the TV part because we were at a BBQ. Oh... and... Lo and Behold... when I drove back to CT from my mother's... Sydney had an AWFUL time and I had to pull over and get a puke package put together because I think she was having an "episode" ..... She looked HORRIBLE... she isnt one to get car sick so I do not think it had to do with that. The poor thing. I was driving along watching the clock and kept telling her to "press the button" to record what was going on. She DID puke at the end of our road! GO FIGURE! I got the puke bucket together on the highway in Rhode Island! YIKES! So... all in all... she is tolerating it well. One more night... She can do it!!!! Sydney, Fiona and CJ... with Patrick looking on... She did not want her picture taken so I had to be inconspicuous!
Getting Situated at Digitrace in Providence.
Not knowing yet what she looked like...
There are some EKG type leads on her back as well... Fiona and Sydney
Dont look at me! I am taking a picture!