OK... so Sydney had her ENT appointment here in Norwich today. She had seen another one up in Providence but it was a big fiasco so we switched the ENT. Well... we waited quite a while in the waiting room but this guy had a SUPER cool play room... TOTALLY vintage but so entertaining for Sydney and Kiley. (I HAD SO MANY VINTAGE PHOTO OPPORTUNITIES FOR AMERICAN MUM's NEXT CONTEST AARGH! AND I DID NOT HAVE MY CAMERA)
anyways... back to the topic... This guy was quite old school with the headlight thing on his head. The old mirror thing... but he was very nice. There were a bunch of people in the office who couldnt quite hear... and some who had a difficult time breathing... but they were all so nice and oogled at the baby.... Sydney had a whole bunch of gooey snot hanging out in her nose and the doctor had to "teach" Sydney how to blow her nose (HOW EMBARRASSING) and determined she had poor nose hygiene... uhhh... ok... well whatever... I guess I will have to use a good ol booger sucker on her nose... you know... the trusty bulb syringes that nearly suck their brains out through their noses.... once the doctor was able to get by the mountainous piles of snot... he noticed everything in her sinuses is a MESS... a HUGE mess... yeah, I do not even want to know. He used these tweezer looking things to really get a good look up the ol shnoz.... then... told me she would need to have an antibiotic for obvious reasons ... but ALSO.. he wants her to have a sweat test done.... to rule out Cystic Fibrosis... I am DUMBFOUNDED... how did boogers in her nose turn in to needing CF testing???? She is nearly 7 years old... wouldnt we know by now? And, with all the testing she has had done related to the Panayiotopoulos Syndrome and the Cardiac VSD and the journey to have those Diagnoses... how come THIS has NOT been an avenue traveled before? Also, when me and Chris were having the genetic counseling when we were pregnant with Kiley, they had us have the CF screening because Chris also has Pancreatitis.... but... I thought those came back ok... do they change with each pregnancy? Do they say 1 in 100 type chances? I can NOT for the life of me remember... but I thought they said we would not have a child with CF.... I will NOT over-react.... I dont get it... and last weekend the worry was about the strained muscle in her hip and the inconsistencies in her XRay she had done. I am SO over this worry about medical stuff. I need a vacation... seriously! And Chris is leaving for Texas on Father's day.... lucky.....
The irony of all of this is that I was in the process of thinking about this blog... and their journey... and the CF.... and everything else... and praying that everything turns out ok for them... and THIS... FROM WHAT HAT WAS THIS PULLED OUT OF... how come Sydney keeps on throwing us for these COMPLETE loops???? It never ends with her..... NOW I need to find out why ALL my other children are loaded with boogers... I need EVERYONE to be healthy in this house for once... which probably will NOT happen until my housing moves us... and they are NOT going to do that... JERKS... Zzz... I need to go to bed... I have a bunch of pics... but... dont have the camera on me... and im too tired to get up... and I am consuming WAY too many calories... and need to run my big butt off.. and everything else...
And Dont get me started on the MRSA drama.... and Softball....
3 comments:
Wow...that's a lot all at once... try to take a deep breathe and see what comes.. it may just be the old school doctor being very in-depth. Keep us posted.
Oh, I know the ENT you are talking about. We went there too. He was funny! I'm sure he is erring on the side of caution with the testing. It is always good just to rule something out!
a few thoughts for you.
1) The sinuses can be a sign of possible CF. Pollups (sp?) are especially common with CFers. Sinus problems are more common with people who don't have CF.
2) If your daughter has been tested before for CF (especially the sweat test as it is typically the most reliable), and those tests came back negative, any further tests will probably also come back negative. If this doctor is unaware of previous testing, it's understandable why he would recommend it.
3) I wouldn't have my child tested again for CF based on the recommendation of one ENT. If you are concerned (and I won't tell you if you should be or not), go see a specialist and get a second opinion.
4) If you and your husband were tested, and at least one of you is not a carrier of the CF gene (and mutations), then none of your children will ever have CF. Of course, there is a slim margin for error with those tests, but they are incredibly reliable. Both parents MUST be carriers of the gene in order for a child to possibly have CF, and only then is it a 25% chance for each child.
5) Really, the only reason that anyone goes undiagnosed for CF for many years is because they have not been tested. If a specialist who knows what they're doing and looking for tests a person for CF, the chances of that person being misdiagnosed are incredibly slim. Our friend who was diagnosed just last year had simply never seen any doctor who knew enough to see the signs of CF.
All that to say, calm down, take some deep breaths, and do some research on some CREDIBLE websites, starting with CFF.org. If you're still concerned after you've had time to think and study, contact a specialist and ask about your options.
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