Sydney's Stress Test....

Was not good...well, she did fine actually... didnt tire out and was able to complete quite a bit of it. So cute to watch her on the treadmill looking like a pregnant woman with the pack on her belly..... She then went and had another EKG done.... and then we met with the Heart Rhythym Specialist from Boston Children's to find out... the EKG's from her appointment in August, the halter monitor AND the stress test all DID show she had the "Racing Heart Rhythm" that the doctor (Doctor Ford) had NOT gone in to detail with last time. Dr. Triedman had Sydney go out in the waiting room with my mother while he discussed the issue with me. I really wish Chris and/or my mother had been in the room with me because it is ALOT to digest.Sometime in the end of Oct/early Nov Sydney will be going up to Boston Childrens and will be having the ablation completed (Catherization, up through the leg in to the heart) to burn off or freeze the spot on her heart that has the misfire.... I am scared to bits.... we are at a crossroad of not doing anything and hoping for the best ... or doing the procedure and hoping for the best.... to improve her quality of life and to relieve worry in us as well, it is best to opt for the procedure to be completed. This is the condition that many children/adolescents/adults will just drop dead at the drop of a hat. It isnt something to toy with. Since Sydney has been symptomatic for a LONG time... possibly MORE SO this issue vs. a seizure disorder... we will now need to follow up with neuro and see what their take is on this. there is HARD evidence that this is a problem based on her EKG and the obvious abnormality in her rhythym. the procedure is 90% effective. The condition she has is called Wolff Parkinson White Syndrome (WPW)
So, as you can tell, this is ALOT to digest right now.... there are alot of risks to having the Ablation done... but, there are also ALOT of risks included with NOT having this completed. The doctor told us NOT to paralyze our lives based on the diagnosis... we are lucky to have stumbled upon the abnormality in the EKG at her last appointment. She was going to be released to be seen strictly at her Pediatrician for the Murmur (Ventricular Septal Defect) Chris is upset.... his initial thought, like myself, was to basically have her sit stagnant until this is fixed... and to have all the money in the world to bring her to Toys R Us and let her buy everything she wants. It isnt fair to have a child with all of this garbage to deal with... and it is hard as a parent to have a "less than perfect" child. She is PERFECT... dont get me wrong... but there is SO much guilt for me... and I am SURE for Chris to have to think about this stuff.... She will have to spend the night in boston the night before the ablation for pre surgical treatment and more than likely at least one night following the procedure. I hope we get a hotel with a pool.... we have to walk on eggshells around her when discussing it as we do not want to frighten her. She was frightened last time and when I talked about how the doctor said "dont paralyze your lives" she thought she was going to get paralyzed and was sobbing .... So, if you can, please pray that miss sydney comes out of this on top... and maybe we FINALLY Will have a COMPLETE Solid answer to what has been going on with her for 5 + years of poking and prodding and everything else under the sun.....