Cathy is having a giveaway pertaining to COFFEE Which is my newly found morning hero! Well, not really... but I Really wish I had opened up to the whole new world of coffee a LOOONG time ago... like, in COLLEGE when I was last minute procrastinating completing a 32 page paper or something! LOL!
Anyways... back to the subject of MY HERO. A lot of ideas ran through my mind as to who my hero was.... My mother... Check... My uncle MIA in Vietnam since 1967... Check... My grandfather... CHECK.... Ju... MOST Certainly... Ali... GOOD GOD YES..... so... for many reasons there are MANY people I could consider a hero..... but... Who is my HERO of a hero????
I would have to say that that person is my Sydney....
It began shortly after she was born and she was having sleep jerks that I had certainly NOT experienced with Ashley, my first born. At a mere 3 weeks old, Sydney was in having her very first EEG.... what a sight to see... my little baby hooked up to a bunch of electrodes trying to see what was going on in her little head. This was just weeks after 9.11.01.... and to have THIS happening?? What was going ON?!?!?! NOTHING was found on this EEG... so, being the young mother I was at the time, ok... everything is FINE because the doctors said it was. So, for the next few months of her life, everything was ok. THEN.... at 18 months old.. she spiked a fever. We went to the pediatrician and they found a heart murmur. OK... What is going ON?! Why did it take so long to find this? Now what do we do? Do we play with her the same way? Is something going to happen to her? We were once again reassured days later that everything was ok. The hole was just a pin size and should close up. So, fast forward to when she was 3 years old... and we were living in the boonies in Washington State. Sydney started having episodes where she would wake up and I would hear her crying this weird cry and I would go in to the bathroom and she would be in there, blue in the face, pale, blue lips... very floppy and then would vomit. Her color would return, and she would sleep for a bit in our bed, wake up and say "OK, I want to go back to my bed" and off she would go. this would happen about 1 time a month... so, I am going to cut my story short... many test later regarding her heart, A whopper of a blue faced episode in Arizona visiting friends, many EEG's... many different doctors... one hospitalization, MRI's, CAT Scans etc... BLOOD work out the Wazoo, We FINALLY found a doctor who would try to get the bottom of what had been called a "Benign Rolandic Epilepsy" by a neurologist in Texas. This doctor determined it is quite possibly that Sydney has Panayiotopolous Syndrome.... I still dont know how much truth is in this diagnosis as it seems to change as Sydney gets older... but she has not complained through this whole journey... She had a summer to remember with 72 Hour EEG etc. and then, in August with her Cardiologist, it has been determined that Sydney may have a racing heart rythym (Same thing as the kids who drop dead on the basketball court etc) so... Tuesday we will head out for her Stress Test and hope for some GOOD news... Of all my children... I am "Thankful" that Sydney is the one who has to have the "problems" ... not that I want ANY Of my children to have problems.. but she is so easy going and tolerant. She doesnt complain much of pain (which has made diagnoses difficult) and just takes everything in stride. She is my hero because I do not know that I would have been able to tolerate all of this constant testing. I could not sleep through a sleep study... I couldnt wear an EEG for 72 hours... I would if I had to, but I know I would be a MAJOR complainer... and my Sydney is not.... She is my hero. I am proud of her for being so brave. She makes it much easier for Mommy when she is so brave and not scared. Although inside I am sure she is scared. I know, alot to digest for a synopsis of a story!!!
If you want to join in ... hop on over to visit Cathy at Under the Big Top and tell us who your HERO is!
Thank you Cathy for hosting and awesome giveaway and a reason to blog something!
Here is my Miss Sydney at a 4th of July BBQ where there was a bounce house, trampoline, pool and other awesome fun kid stuff... and she just hung out and tolerated watching her sisters be able to do all the "fun" stuff as she watched... she wasn't able to be around static electricity with the EEG on.
Here is my Miss Sydney at a 4th of July BBQ where there was a bounce house, trampoline, pool and other awesome fun kid stuff... and she just hung out and tolerated watching her sisters be able to do all the "fun" stuff as she watched... she wasn't able to be around static electricity with the EEG on. 
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