Saturday, May 2, 2009

Monday...

Someone PLEASE remind me on Monday to call and schedule Sydney's annual EEG. While I am at it, I am going to call her cardiologist.
She is acting awful tired lately again and it has me worried that something is going on and once again she doesnt verbalize to us if she feels funny.
In the past, (when she was 3-4 years old) was when she would wake in the middle of the night with a gray face and blue lips and be really floppy and we would typically find her in the bathroom crying an odd cry. She would then vomit and then recuperate.
It was believed that she has the Panayiotopoulos Syndrome but her Electrophysiologist in Boston seemed to believe that this was all going to be resolved and he believes all of those spells were the Wolff Parkinson White and not the Epilepsy.
So... I am concerned about her again and how tired she is... before everyone else... again. I am hoping that we arent seeing signs that the Ablation did not work. She was declared "Cured" but still had the 15% chance that the pathway could grow back because of the whole heat vs. freezing and not being able to use the more successful method during her procedure. And with how easy it was to stimulate the Tachycardia when they were in there. Ugh.... so, I am calling monday. I do not know if they will want me to drive up to Providence and have an EKG done or if I will be able to have one done here and Dr. Ford (Cardiologist) or if Dr. Triedman (Electrophysiologist) Would need to be the one to look at it.
Ugh. I need some peace of mind. I get so worried when she gets like this... but she has had her allergies flare up again this week.

1 comment:

mom2natnkatncj said...

Do you think her allergies could be what's making her tired? I know my allergies always wear me out. Well, hopefully it's nothing and this is just a precaution. Maybe they've just been working her at school really hard lately or something. Trying to get that last bit of work in before the end of the year.